Thursday, 15 March 2012
Out of hospital and health update
I'm out of hospital, they let me out yesterday, a day earlier than I was expecting! Super yay!
I've got some new drugs to try and help my lungs, as they have gotten no better and a little bit worse in the month since I started treatment for them and if the drugs don't begin to work in the three weeks before my next check up with the pulminary docs they want me back in for some IV treatment. So fingers crossed big time there!! I am planning to not be back in hospital Any Time Soon. I can now also add endocrinologists to the gamut of specialists dealing with my case as the tests they ran show my adrenal glands are working and yet my cortisol is low so my hepatology docs want to consult with them to decide what to do about it. Also, my BCR-ABL results (leukaemia concentration in blood) have come back from the February tests and show they have risen a little bit, from 5.6 to 8.8% Not good, but not toooooo bad either. My haemotologist said she wants to see two spikes in my levels before she needs to put me back on meds but they want to get the lungs and the adrenal glands sorted out first anyhow. My liver count is finally back under 35 (where it is meant to be) after over a month, very excited about that and my kidneys are almost back to normal too. They are attributing their rise in numbers to a mixture of my immunosuppressant and antifungal medications so they have lowered the immunosuppresants slightly while I get over all these stupid fungal and bacterial infections.
And that's the latest in my health news. Ahh, I miss the days where I could wrap up health news in a sentence. Oh, I had a cold last week but I'm better now. If only. Now I just sound like a contender for the World's Biggest Hypochondriac. Please God, don't let that become a new reality TV show.
Anyhow, just a quick post from me today, I'll probably be absent for a few days because I have a housewarming party to organise and hold - whee! It certainly won't be anything like the spectacular parties I see hosted on some of your blogs. I am making a coleslaw, a potato bake and perhaps a plate or two of nibbles. MR is in charge of BBQ duties with whoever else that volunteers on the day and I have had six very kind and helpful people offer to bring more salads for me. I am trying to be very casual and not my usual crazy over-catering self who thinks of lots of yummy things she could make that take many hours of preparation. There will be no bunting, no rainbow cakes, no fancy colour themes, no themes at all for that matter. Just a typical run of the mill Aussie BBQ. And that is fine by me. It will just be nice to spend time with friends and family. MR's parents are coming down Saturday night and my Mum is coming around a bit early on Sunday to help us to get everything organised without me getting worn out. And then all I have to stress over is making sure all our different groups of friends interact and no one gets left feeling lonely!
Looking forward to catching up on everyone's blogs when I'm back. x
A Year of Good Things
73/366 ::For Transplant Australia::
My Run for a Reason fundraiser page reached and passed it's target of $1000, I'm now up to $1045, two whole months before the event! Time for a target raising! Thanks to those bloggy people who have donated, you know who you are!!
74/366 ::For me::
Out of hospital on my liver's five month anniversary - yay!
75/366 ::For my meow::
Lots of cuddles and attention after being left alone (the neighbour fed her) for 3 days and 2 nights